My GP denies my lipedema symptoms and refuses to refer me to an angiologist: what can I do?

10 Mar 2025 | Find out

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It can be difficult to feel misunderstood by your doctor, especially when you experience symptoms that are not recognized or taken seriously. This can be particularly frustrating if you suffer from little-known conditions such as lipedema. If your GP doesn’t recognize your symptoms or refuses to refer you to an angiologist, there are several avenues you can explore to obtain appropriate treatment.

Find out more about lipedema with this article (available on our website via menu > articles): https: //lacliniquedulipoedeme.fr/tout-savoir-sur-le-lipoedeme/

Why do some doctors have trouble recognizing lipedema?

Lipedema is still poorly understood in the medical community, and remains a relatively unknown pathology for some healthcare professionals. Several factors may explain this reluctance:

  • Lack of understanding of the condition: Not all doctors are necessarily trained in lipedema, and some may confuse it with other problems, such as obesity or water retention.
  • Lack of clear recommendations: Lipedema is not yet recognized in all medical classifications, which can lead to its severity being downplayed.
  • Medical biases: Sometimes, symptoms can be attributed to external factors, such as lifestyle habits, rather than being considered as an underlying medical condition.
lipedema

What symptoms should I look out for?

If you want your doctor to take your situation seriously, it’s important to describe your symptoms clearly. Among the signs that may be suggestive of lipedema :

  • Abnormal accumulation of fat on legs and/or arms, often symmetrical and resistant to diet or exercise.
  • Spontaneous pain and hypersensitivity, even in the absence of pressure.
  • Frequent bruising for no apparent reason.
  • Sensation of heavy, swollen legs, aggravated by heat.
  • Symptoms worsen during hormonal periods, such as puberty, pregnancy or menopause.
lipedema

How do you react to a reference refusal?

If your GP does not refer you to an angiologist, here are some possible solutions:

  1. Seek a second medical opinion You always have the option of consulting another professional. Another doctor may be more likely to hear your concerns and refer you to a competent specialist.
  2. Making an appointment directly with an angiologist In some cases, it is possible to consult an angiologist without your doctor’s referral, although reimbursement may be partial or non-reimbursed depending on your care pathway.
  3. Building a solid medical file Gathering a complete medical file can help you make the most of your symptoms. This file can include a diary of your symptoms, photos of the evolution of your condition and references to medical studies.
  4. Some organizations, such as La Clinique du Lipœdème, offer consultations with specialized professionals. If no specialist is available near you, a teleconsultation may also be a viable solution.
  5. Get in touch with patient associations Patient associations can offer support, practical advice and information on healthcare professionals who are aware of lipedema.
  6. Asserting your rights in the event of an unjustified refusal If you feel that a refusal of consultation is unjustified, there are remedies available. You can contact the Ordre des Médecins or ask the Caisse d’Assurance Maladie mediator to review your situation.
lipedema

Why is early diagnosis essential?

Early diagnosis not only means faster, more appropriate treatment, but also helps prevent possible complications. Treatments such as lymphatic drainage, compression or appropriate physical activity can considerably improve patients’ quality of life.

Conclusion

It can be discouraging to feel misunderstood, but there are ways to get the care you deserve. Don’t give up hope and explore your options: consult another doctor, make an appointment directly with a specialist or join a community of lipedema patients.

The Clinique du Lipœdème is here to support you on your medical journey. Our experts are at your disposal to establish a precise diagnosis and propose a treatment adapted to your needs.

Don’t wait to get the help you need. Schedule a personalized consultation today.

If you have any questions, you can ask them on our instagram: https: //www.instagram.com/p/DGdp6KAtj9h/

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Article written by La Clinique du Lipœdème | Learn more

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